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Genetic testing resources

We hope we’ve given you all the information you need but there really is a lot to take in. In case we’ve missed anything, we think these resources are really helpful too:

  • A Beginner’s Guide to BRCA1 and BRCA2 – by the Royal Marsden NHS Foundation Trust 
  • A Beginner's Guide to Lynch syndrome – by the Royal Marsden NHS Foundation Trust and Lynch Syndrome UK
  • Prospective Lynch Syndrome Database – Open access database to find out your risks, for different gene mutations at different ages
  • InSight: The International Society for Gastrointestinal Hereditary Tumours (InSiGHT) is an international multidisciplinary, scientific organisation whose mission is to improve the quality of care of patients and families with any hereditary condition resulting in gastrointestinal tumours

England, Wales & Northern Ireland


Template letters

To help demonstrate your right to BRCA testing you can download one of the following template letters and take it to your GP:

Genetic Testing Translations 

As part of IMPROVE UK and in collaboration with Sandwell and West Birmingham NHS Trust, and Cancer Research UK Cambridge Centre, we've hosted videos about genetic testing for ovarian cancer patients, which were created with patients from Birmingham and Cambridge. Each video has been translated into Bengali, Polish, Punjabi, Romanian and Urdu. 

Please find links to the video playlists below: 

We also have a range of written resources translated here.