Where can I find support?

Ovarian cancer support

…because we all need a helping hand sometimes. Feel free to contact us and we’ll do all we can to help.

Ovarian Cancer Action

Call us on 0207 380 1730. 

You can also email info@ovarian.org.uk or get in touch with Jo Stanford, our Cancer Prevention Officer at brca@ovarian.org.uk.

Support groups in your area 

Please contact us and let us know if you have a support group that we can include on our website.

BRCA Kent

BRCA Kent is a local, voluntary-led group to support women in Kent with the BRCA1/2 gene mutation. The group offers experience, support and friendship in a safe and caring environment.

The support group runs at the following locations on different days each month between 7-9pm:

  • West Kent Meetings: KIMS Hospital in Maidstone
  • East Kent Meetings: Kent and Canterbury Hospital, and QEQM Hospital in Margate

Please email info@brcakent.org.uk before attending.

Visit their website for more information at brcakent.org.uk.  

You can also find BRCA Kent on:

BRCA Brighton Support Group

This group meets once a month at the Macmillan Horizon Centre in Brighton and is a self-support group for women of all ages in Sussex who have tested positive for the faulty BRCA1/2 gene. The group shares knowledge and experience and offers support in a confidential and friendly environment. It also has visiting speakers. 

Some group members have had, or are considering, risk reducing surgery whilst others have decided to choose regular surveillance as a way forward. 

There is a Facebook page you can join – BRCA Brighton (members have to send in a request to be approved).

For further details please contact BRCAbrighton@gmail.com.

FORCE - Essex

FORCE is a US-based group with a branch in Essex who have group meetings for members. See more here.

BRCA Umbrella

An online support forum for men and women with a hereditary risk of cancer. There are local branches that hold support groups in the following areas. 

  • Edinburgh
  • Glasgow
  • Paisley
  • North Yorkshire
  • Manchester
  • Birmingham
  • Bristol
  • Hertfordshire/ North London
  • Liverpool (Independent group)

Join BRCA Umbrella at brcaumbrella.ning.com.

BRCA Link NI

BRCA Link NI is a voluntary organisation in Northern Ireland that helps people access information and support about BRCA genetic mutations. 

Both formal and informal group meetings are held throughout the year. 

If you would like to speak to someone you can email info@brcani.co.uk or post a message on the BRCA Link NI Facebook page.

Online support 

BRCA Umbrella

BRCA Umbrella is an online support forum for men and women with a hereditary risk of cancer.

For more details please email caroline.presho@brcaumbrella.org.uk.

Genetic Alliance
Genetic Alliance is a charity working to improve the lives of patients and families affected by all types of genetic conditions.

For more information you can email contactus@geneticalliance.org.uk and call 020 7831 0883. 

FORCE – Facing Our Risk of Cancer Empowered

A US-based group with a branch in Essex, UK, providing information and support for those affected by hereditary breast, ovarian and related cancers. Click here to find out more.

Breast Cancer Now

The ‘Someone Like Me’ Service matches people to others in a similar situation to theirs. Click here to find out more.

The Daisy Network
The Daisy Network provides support to women, along with their families and partners, who have been through a premature menopause. Provides a support network of people to talk to as well as information on HRT and assisted conception.

For more information please email info@daisynetwork.org.uk

Lynch Syndrome UK

Lynch Syndrome UK provides information and support for people with Lynch Syndrome, and raises public awareness of the condition. 

You can join their online support group here

Lynch Syndrome International

Lynch Syndrome International (LSI) provides support for people affect by Lynch Syndrome, raises public awareness, and educates members of the general public and healthcare professionals about the condition.

Jnetics

Jnetics is a charity dedicated to improving the prevention, diagnosis and management of Jewish genetic disorders. They raise awareness and help anyone affected and at risk to access the best information, services and support available. To learn more about the charity email info@jnetics.org, and call Jnetics London on 020 8123 5022 or Jnetics Manchester on 0161 240 6240.