Your Stories
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Shannon: “I fell pregnant and nearly turned my back on ovarian cancer treatment - I was terrified my baby would die”
Shannon had to undergo gruelling treatment for ovarian cancer while pregnant with her son, Hunter. She was diagnosed with a rare form of ovarian cancer and almost refused surgery because she was terrified of the impact on her son. He survived, and his Mum has now found incredible strength and hope for the future. Read Shannon's story. -
Fiona: "I feel grateful and privileged to have been able to contribute to smoothing the pathway for other people "
After a shock diagnosis of ovarian cancer, Fiona gave up the career she loved to retire early. Getting involved in the creation of a new NICE guideline gave Fiona a new focus and the chance to make a difference. She tells us her story here.
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Claudia: "To all the doctors, nurses, administrative staff, volunteers and many other people who helped me, thank you all for saving my life – twice…"
After being diagnosed with two different primary breast cancers at age 52 and 59, Claudia decided to have genetic testing. After she found out she carried a faulty BRCA1 gene, she had to decide whether surgery to reduce her ovarian cancer risk was for her. She tells us her story.
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Michelle: "Some days I do feel there is no end to the worry of another recurrence but... Life goes on. I'm still here"
Michelle was working as a nurse when she was diagnosed with stage 3 ovarian cancer. After a recurrence, she was able to access the PARP inhibitor rucaparib (Rubraca). Here she tells us her story of how she deals with the fear of recurrence, including the exciting adventures she’s including in her life.
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Angela's Story: I fear the future as there is no answer to how long I remain in remission
Angela was 52 when she started experiencing a fizzy feeling in her bladder. In October 2022, she was treated for a UTI but when the symptoms didn’t go away, she was sent for scans which revealed a large tumour on the ovary. She was then diagnosed with stage 3c ovarian cancer.
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Chrissie: “All I want now is another Christmas with my family and friends”
Chrissie tells us about her ovarian cancer story; from the initial symptoms and getting a diagnosis, to being a mother whilst living with cancer. Chrissie's remarkable story ends with one wish: more cherished moments with loved ones. -
Sarah – ‘this diagnosis doesn’t mean the end of your life – you are still living’
In May 2016, Sarah sat by her 94 year old Grandma’s side whilst she died of ovarian cancer. Her Great Grandmother had died of it in her 60’s too. 18 months later, Sarah’s experience of ovarian cancer became even more personal.
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Alexandria: ‘I had ovarian cancer, that’s why I’m discovering breakthroughs for other women with the disease’
Alexandria was diagnosed with stage 1 ovarian cancer in 2014, while she was at university studying to become a scientist.
Her experience fuelled a passion to study ovarian cancer research, and improve diagnosis and treatment for other women. It’s been eight years since Alexandria finished her treatment, and she’s now proudly working at our Ovarian Cancer Action Research Centre. Alexandria passed her thesis defence is 2023 and is now has a PHD in cancer studies.
Here she shares her story.
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Olivia – ‘Mum was not only a parent but, as an only child, she was my best friend, and Dad’s best friend too.’
Ellen Javed passed away from ovarian cancer in May 2020, in the midst of the Covid pandemic and weeks after her daughter Olivia had turned 21. In this heartfelt tribute, Olivia tells her story and how her mum’s strength and resilience shone through, even at the hardest of times.
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Hollie: “We must do more to save the lives of women like my mum”
Helen Clarke was diagnosed ovarian cancer in 2015, aged 57. Helen was misdiagnosed time and time again, even when her cancer returned. Sadly, she passed away from ovarian cancer in March 2018.
Five years on, Helen’s daughter, Hollie, highlights why we need to educate others about the disease and why early and accurate diagnosis is vital.
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In Margaret's Name - her story, told by her husband
Margaret Anne Scougal was born in 1952. At the age of 16, she became a cadet nurse at the Cumberland Infirmary, Carlisle. Upon retirement, she had been a business manager, ward sister and matron of orthopaedics. She helped to train scores of nurses starting out. Years later some of those very same nurses treated her for ovarian cancer. Margaret died in June 2021 aged 69. This is her story, as told by her husband, Tony.
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Lynne: “I want to show other women with ovarian cancer that they don’t have to walk alone”
Lynne was diagnosed with ovarian cancer on Valentine’s Day 2018, aged 51. To celebrate five years since her diagnosis, Lynne is taking part in Walk In Her Name in memory and support of other women with the disease.
Here Lynne shares her story, why she’s taking part in the challenge this March for Ovarian Cancer Awareness Month and how you can join her.
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Natalie Pearce: "Being aware of the faulty BRCA gene has helped my family"
"This photo still stops my heart. I remember how scared I was and how I was trying to put on a brave smile."
Natalie was diagnosed with Stage 3c ovarian cancer in November 2012, aged 40. Now, celebrating a decade since her diagnosis, she wants to share her story to give hope to anyone, especially with late stage ovarian cancer, who has just been diagnosed, or who is undergoing treatment.
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Phoebe Usher: "I’m so grateful for all of the previous research"
Your funds are the future. Read Phoebe's story to find out why she's taking part in the Walk in Her Name 100km challenge.
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Emma: "Never in my life did I think it would be me, especially not at 20"
It all started earlier in the year when I developed symptoms like having to get up to wee a lot during the night, feeling sick all the time and losing my appetite. The doctors and I both put it down to IBS, never in my life did I think it would be cancer.
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Nicola Butler: "I didn't want to worry them so I kept the chance it could be cancer to myself"
Nicola was 46 years old when she was diagnosed with stage 1c epithelial germ ovarian cancer. In January 2023, it's five years since her treatment ended and her final appointment with her consultant (before she moves under the care of her GP with annual blood tests). Here she reflects on the importance of listening to your body.
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Kirsty: “My wish for the future, is that together we can make ovarian cancer a disease every woman survives.”
Kirsty Chisholm was diagnosed with a rare form of ovarian cancer at just 29 years old. At the time, she and her husband were newly married and couldn’t wait to start their family. But they soon realised it wasn’t going to be that simple.
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Hannah's story - from a dad to a daughter
"While Hannah might not be here physically anymore, I’m still so proud to be her dad and that responsibility to her won’t ever stop."
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Marion Bines: "Being told I had ovarian cancer was so surreal"
Marion Bines, was diagnosed with stage 3c ovarian cancer in November 2017 at the age of 52. She told us about her ovarian cancer story and how she considers herself 'one of the lucky ones'
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Helen Hogg: "I was continually told that it was just the menopause"
Helen was diagnosed with ovarian cancer in 2007, aged 47. She's now a proud grandmother and in her words 'I know how lucky I am to still be here'. This is her story.