BRCA Right To Know

We want all women with ovarian cancer across the UK to routinely have access to a BRCA gene mutation test. Do you agree? Sign our epetition today and tell your friends about it too!

NICE guidelines indicate that women qualify for BRCA testing but this is not currently happening and is not uniformly available to patients consistently across the UK.

We want your help to inform women of their Right To Know and, in turn, put pressure on the governement and the NHS to routinely implement the NHS guidelines.

How do I help?

  • Sign our epetition today
  • Tweet your support using #BRCARightToKnow thank you!
  • Join our live twitter chat on Tuesday 10 March at 7pm using #BRCARightToKnow to discuss why it is important for women to have access to the BRCA gene test
  • Does your family history put you at risk of ovarian cancer? Use our BRCA Risk Tool to find out and share it with your friends!

Why?

  • Women with ovarian cancer have a 15-20% chance of carrying a BRCA gene mutation
  • Inheriting a faulty gene known as the BRCA1 or BRCA2 mutation creates a greater chance, 35-60%, of developing ovarian cancer
  • The Ovarian Cancer Action BRCA1/2 Gene Testing Policy Report states that trials at The Royal Marsden have demonstrated that testing can be carried out in a way that is affordable, deliverable and beneficial to women with the disease and their families
  • Knowing that you carry a BRCA gene mutation can help inform women's treatment paths and may provide trials for them to participate in
  • Women who know that they carry BRCA gene mutations can also inform their families and potentially prevent future cancers or help to spot them early
  • Currently in order to qualify for BRCA1/2 testing, NICE recommends a likelihood of having inherited the genetic mutation of 10% or over, determined through looking at family history. But studies have indicated that around 50% of women diagnosed with non-mucinous epithelial ovarian cancer have no family history of the disease