News & Blog
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New NICE guideline published today opens up genetic testing to more people
The brand new NICE guideline ‘Ovarian cancer: identifying and managing familial and genetic risk’ has been published today. -
Fiona: "I feel grateful and privileged to have been able to contribute to smoothing the pathway for other people "
After a shock diagnosis of ovarian cancer, Fiona gave up the career she loved to retire early. Getting involved in the creation of a new NICE guideline gave Fiona a new focus and the chance to make a difference. She tells us her story here.
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Claudia: "To all the doctors, nurses, administrative staff, volunteers and many other people who helped me, thank you all for saving my life – twice…"
After being diagnosed with two different primary breast cancers at age 52 and 59, Claudia decided to have genetic testing. After she found out she carried a faulty BRCA1 gene, she had to decide whether surgery to reduce her ovarian cancer risk was for her. She tells us her story.
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Hannah: “Let’s come together this March and celebrate the women who inspire and support us”
Many of us have had incredible women in our lives. Women who have always been there for us - mothers, sisters, daughters or friends. We talked to Hannah, who sadly lost a female friend to cancer and works for Ovarian Cancer Action, about why it’s important to pay tribute to these special women we know. This March, she’s invited her loved ones to join her for Walk in Her Name as a way of celebrating one another. -
Joe: “Walk In Her Name was one of the proudest moments I've felt”
Joining thousands of incredible supporters, last year Joe took part in our walking challenge for England Lioness star Beth Mead and her late mum, June. The football community and beyond had stepped out to show their support for Beth and to work towards a world where every woman survives ovarian cancer. Joe knows all too well the difficulties of losing a mum to cancer. Here he tells his story and why he was moved to take part in Walk In Her Name. -
New NHS Jewish BRCA Testing Programme Launched.
Ovarian Cancer Action were so excited to see the launch of the NHS Jewish BRCA Testing Programme, which will allow more people than ever to learn their risk and take action to prevent cancer. -
Lindsey's story: "The knowledge of my BRCA2 gene mutation is a gift; a gift that could ultimately save my life"
Despite having no known family history of cancer, Lindsey decided to take part in the NHS Jewish BRCA Testing Programme as one of her grandparents was Jewish. She was shocked when she found out she does indeed carry a faulty BRCA gene. She tells us her story here.
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World Cancer Day 2024: Ovarian Cancer Action take parliament for #CatchUpWithCancer
At Ovarian Cancer Action, we want all women to survive ovarian cancer. We’re determined to make sure every woman gets the treatment they need when they need it. For World Cancer Day 2024, we went to the Houses of Parliament, alongside 20 cancer charities, to call on the Government and opposition parties to drastically reduce waiting times for cancer patients. -
Michelle: "Some days I do feel there is no end to the worry of another recurrence but... Life goes on. I'm still here"
Michelle was working as a nurse when she was diagnosed with stage 3 ovarian cancer. After a recurrence, she was able to access the PARP inhibitor rucaparib (Rubraca). Here she tells us her story of how she deals with the fear of recurrence, including the exciting adventures she’s including in her life.
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Angela's Story: I fear the future as there is no answer to how long I remain in remission
Angela was 52 when she started experiencing a fizzy feeling in her bladder. In October 2022, she was treated for a UTI but when the symptoms didn’t go away, she was sent for scans which revealed a large tumour on the ovary. She was then diagnosed with stage 3c ovarian cancer.
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Douglas: ‘I am keeping her memory alive by fundraising for my amazing wife’
In a period of just a couple months, Douglas’ wife, Gillian, deteriorated rapidly. Now, Douglas is sharing her story and how he is keeping her memory alive by fundraising for Ovarian Cancer Action. -
News: NICE recommend maintenance treatment combination of olaparib and bevacizumab for routine use on the NHS
The National Institute for Health and Care Excellence (NICE) have today announced they have approved the combination of olaparib (Lynparza) with bevacizumab (Avastin) as ovarian cancer treatment. Find out more about the ovarian cancer treatment update. -
Tracey: A quick blood test to find out your BRCA status could save your life
Tracey tells us about her genetic testing experience. After finding out she was BRCA positive, she had risk-reducing oophorectomy. During the surgery they discovered she already has ovarian cancer. -
Ameena: I often feel like a ticking time bomb
Ameena had long suspected that the many cases of cancer in her family, including her own, were linked to a hereditary cause. Here she tells her story of uncovering her family's inherited risk.
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Behind the headlines: two in one c-section & ovary removal
In early November 2023, several media outlets shared an interesting case report: Several women with a high inherited risk of cancer had opted to have their ovaries removed at the same time as having a caesarean section when having their baby.
Here we look behind the headlines to learn what this procedure is, and who it might be suitable for.
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Chrissie: “All I want now is another Christmas with my family and friends”
Chrissie tells us about her ovarian cancer story; from the initial symptoms and getting a diagnosis, to being a mother whilst living with cancer. Chrissie's remarkable story ends with one wish: more cherished moments with loved ones. -
Linsey: “My wonderful Mum could still be alive today - if only the GP had done two simple things”
Linsey tells us the story of her mother, Anne who was diagnosed with Stage 4c ovarian cancer in 2011, after switching to a private GP. Here, she tells us of her mum's struggle with getting a diagnosis, treatment and what she wants all women to do if they suspect they're experiencing ovarian cancer symptoms. -
Sophie: “I was told I had a harmless cyst - then I was diagnosed with a rare cancerous tumour”
Sophie tells her ovarian cancer story. How she was diagnosed with ovarian cancer and planning for the future. -
Ovarian Cancer Action on AARC: An exciting time for Ovarian Cancer Research
Our grants and impacts manager, Faye travelled to Boston for the AACR conference on Ovarian Cancer. She talks through key speakers, event highlights and the update from the Ovarian Cancer Action Research Centre. -
New NICE guideline released- Have your voice heard!
NICE have released new guidelines on ‘Ovarian cancer: identifying and managing familial and genetic risk’. The consultation period for the guidelines is open and we want you - our community - to have your voice heard and feedback.